I have not had time to update the blog in a few weeks, but Emily was doing so well. She was discharged from Great Ormond Street and had been at home with us for 10 days and was so perfect and doing everything she should have been doing.
She had a really good day yesterday but became very ill very quickly and suddenly last night. Emily was sleeping soundly and woke up and started to cry. It was time for her feed so we started to prepare her bottle but her cry suddenly changed from being a normal hungry cry to something very different and we knew that something was wrong. We knew instantly we had to get her to hospital so I ran upstairs to throw on clothes and in this time Emily stopped breathing. Ian had to perform CPR on her while I called an ambulance and she started to come around, but on the way to the hospital unfortunately they lost her again and they were not able to resuscitate her at the hospital.
We cannot believe this has happened as she was such a fighter and was doing so well. We miss her so much and are feeling so lost and empty without her. Emily was beautiful and gave us so much joy in her short time here. It feels so unfair that she had to go so soon.
Please sleep safe our beautiful daughter, we hope you know how much you are loved and how much happiness you brought to so many people in your time here. Thank you for coming to us and trying your best, we know you gave it your all.
xxx
